Joy was mingled with sadness on Thursday when Amie Rohan, wife of Sydney Swans footy star Gary Rohan, gave birth to twin girls. Bella Rae and Willow Nevaeh were born at 9am to besotted parents. Little Willow sadly died five hours later.

The couple were told 11 weeks into the pregnancy that Willow had anencephaly, a fatal neural tube defect that currently has no cure. Doctors said she would not survive long after her birth and offered abortion.

However, the Rohans demonstrated profound love and wisdom when they publicly announced their intention to carry both babies to term.

“We come to the decision that either way, BOTH our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short,” they wrote on Instagram.

In the midst of their grief, Amie and Gary have again taken to Instagram to express the innate value and beauty of life, even if it only measures five hours beyond the womb.

“Amie, Bella and I soaked up every second we had with Willow, making as many lasting memories as we could all together. Its those little moments we know we will never get back, and we will forever cherish the time we spent as our little family of four, before our darling Willow grew her little angel wings.”

We offer our sincere congratulations and sympathy as you grieve and adjust to family life.

Here’s the full post that Gary and Amie shared on Instagram

garyrohan16Our beautiful baby girls have arrived
Thursday the 12th of April 2018
Bella Rae Rohan
1780g / 3 pound 9
43cm
8:59am
Willow Nevaeh Rohan
1295g / 2 pound 8
41cm
9:00am
The most perfect little souls we have ever laid eyes on, we feel so truly blessed to be your parents xxx
Amie, Bella and I soaked up every second we had with Willow, making as many lasting memories as we could all together. Its those little moments we know we will never get back, and we will forever cherish the time we spent as our little family of four, before our darling Willow grew her little angel wings 👼🏼
Bella is currently getting some special care in the NICU nursery but all in all doing very well.
We can’t thank our team at the Royal Woman’s enough, yesterday was one off the hardest days Amie and I have ever had to deal with. It was a day full of many mixed emotions and you, our team, made everything so perfect. Words truly can’t express how grateful we are.
To absolutely everyone else, thank you so very much for your kind words and support during this sad, happy, joyful and exciting time in our lives we are very proud parents off two beautiful little girls who we love so very much xxx
Our little angel Willow, oh how much you taught us in your precious 5 hours here ‘A life so brief, a child so small, you had the power to touch us all’


Read Kristy’s story:
Reuben’s short life leaves a long-lasting legacy of love

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